A fun day and launch of MDAI website in Mayajaal

Game show by children

It was a fun day for me and 70 other children yesterday, who are suffering form the Muscular Dystrophy. The Muscular Dystrophy Association India and Sundaram Medical Foundation arranged a fun outing for the parents, children of MD and the launch of website of MDAI www.mdaindia.org in Mayajaal Complex.

Actual it was a fun trip; every one was announced to assemble at Sundaram Medical Foundation yesterday above 11.am, but for us, the place they announced to assemble is very distance form my place, so we directly went to Mayajaal in ECR. Me, dad, mom and our cousin went before they arrive and waited for few minutes, as soon as they arrive the volunteer provide me Wheel Chare to go inside the Mayajaal. There was a lunch party in the center of the hall, with other MD children & parents. It’s the first time I visit the Mayajaal. After the lunch, the parents were announced to leave the children in the hall and attend the doctor’s parent meeting. Form 2, to 4.30pm there were full of fun for us, they conduct some jolly contest for us, many children are very young, shouting and enjoyed the activities. We also enjoy the mimicry program, and some children were playing videogames and car ride. To encourage us they gave prize and gift for our activities. The interesting thing was they tie gas balloons on every kids wrist, they were running here and there with the balloon, which flying up, many kids left the balloon and all went and stick on the roof, again they get a balloon and left it on the roof.

This is Jagan a MD child

Some volunteers and school children also join with us in the fun, they were very friendly and helpful, they helped every child to move and carry them. There was a boy Nandhakumar was very quite sitting behind me and mumble something, when I see him, he will smile cutely. We all forget our disease and suffer, while playing and enjoy the afternoon. I am lucky to see such cute kids playing and talking on the mike, with out worrying about them and enjoying the movement. By 4.30.pm the launch of MDAI website starts. Before the launch, there was a short motion picture of Muscular Dystrophy, shown, and our Dr.V.Vishwanathan explained about the importance of the website, their future plans, the arrangement of the function and introduced all the chief Guests. After minutes Mr.V.Narayanan, director, Chennai Willington Corporation Foundation and other guest like Former Cricket player Srikkanth, ONGC excitive director Dr.C.S.Jain, launched the MDAI Website.

Group song by children

There was also a group song by school children and MD children; their voice was very nice. The lady (I guess she was a doctor) who integrated the program was very sweet, friendly and takes care of every child with love. In the end they gave free wheel chares for children and speech of the Chief Guests. In India this is the first website created for Muscular Dystrophy and its purpose is to create awareness and make it easy for everyone to know about MD. These programs should be welcome; too aware the public, there are so many people with MD. As there were no medicines currently for this MD (hope they will find soon), the support of public will be a big strength for our minds. Please visit our www.mdaindia.com website to know about our disease.The fun day news also came in Hindu