If you are new to my blog or couldn't check my profile, I need to mention that I’m fighting with MD (Muscular Dystrophy), which is a genetic disorder of losing muscles strength and I move everywhere on my power wheelchair. There isn't any cure for it currently globally and perhaps the only way of approach to it was to exercise constantly to delay the course of loss of muscles strength. There’s also a disadvantage lies in this progress of exercise which should not last for long duration; if the exercise had been stressful or painful will also witness in loss of muscles strength. Physiotherapy has become a part of my life from the early stage of development with MD; I was going through therapy off and on and perhaps stopped for a year or so meanwhile taking medicines on various mode of treatment.
I was suppose to write on this only because, I want to say that I was taking physiotherapy for the last three year had been constant unlike ever before, and my therapist Rajesh is visiting me thrice a week on a content fee. I could recollect the day he first gave me exercise and it was extremely a painful moment since he hadn't handled a MD patient before and unfamiliar with my body. But things weren't same, as he kept visiting me frequently, he understood me physically and how much I could endure pain lead me quite comfort with exercise.
MD is a common word used to describe the disorder, and DMD (Duchene Muscular Dystrophy) is the general appearance in most of the patents, but there are several types of MD founded later years. Gladly I hadn't come under the general category (even I feel quite regret for those affected with DMD, whose life span is not more than 25 years) I enjoy the extremely rare exception with LGMD (Limb-Girdle MuscularDystrophy), is an autosomal class of MD which is similar but distinct from DMD and Becker. LGMD encompasses a large number of rare disorders with the term ‘Limb-Girdle’ is referred to the muscles on hips and shoulders which most severely affected in general.
I don’t want to go much in detail about the disorder, as well the distressed or frustrated moments that haunt me immensely then and now, but with better consciousness and knowledge about the disorder I come to show somewhat normal mindset in latter days. I don’t think much about the disorder, but anytime I feel hurt I dislike myself being born as burden or frustrated. But the regret feeling doesn’t used to live long or I change my thought by concentration on other things or drown into dreams. I need to say I haven’t seen a therapist being so kind like Rajesh and I never seen him in tense or harsh during exercise (it’s a different story at beginning while he wasn't well aware about the disorder) I doubt whether he knows at least how to act severely. Hehe… Hope he better stay that way for me to continue happily the exercise.
I think it’s time to go to bed now… time 10.13 pm. Thanks for all your support and encouragement on behalf fight with my MD! :)