Monday, April 08, 2013

Man behind this Blog - MD

It's me... hehe
If you are new to my blog or couldn't check my profile, I need to mention that I’m fighting with MD (Muscular Dystrophy), which is a genetic disorder of losing muscles strength and I move everywhere on my power wheelchair. There isn't any cure for it currently globally and perhaps the only way of approach to it was to exercise constantly to delay the course of loss of muscles strength. There’s also a disadvantage lies in this progress of exercise which should not last for long duration; if the exercise had been stressful or painful  will also witness in loss of muscles strength. Physiotherapy has become a part of my life from the early stage of development with MD; I was going through therapy off and on and perhaps stopped for a year or so meanwhile taking medicines on various mode of treatment.

 I was suppose to write on this only because, I want to say that I was taking physiotherapy for the last three year had been constant unlike ever before, and my therapist Rajesh is visiting me thrice a week on a content fee. I could recollect the day he first gave me exercise and it was extremely a painful moment since he hadn't handled a MD patient before and unfamiliar with my body. But things weren't same, as he kept visiting me frequently, he understood me physically and how much I could endure pain lead me quite comfort with exercise.

MD is a common word used to describe the disorder, and DMD (Duchene Muscular Dystrophy) is the general appearance in most of the patents, but there are several types of MD founded later years. Gladly I hadn't come under the general category (even I feel quite regret for those affected with DMD, whose life span is not more than 25 years) I enjoy the extremely rare exception with LGMD (Limb-Girdle MuscularDystrophy), is an autosomal class of MD which is similar but distinct from DMD and Becker. LGMD encompasses a large number of rare disorders with the term ‘Limb-Girdle’ is referred to the muscles on hips and shoulders which most severely affected in general.

I don’t want to go much in detail about the disorder, as well the distressed or frustrated moments that haunt me immensely then and now, but with better consciousness and knowledge about the disorder I come to show somewhat normal mindset in latter days. I don’t think much about the disorder, but anytime I feel hurt I dislike myself being born as burden or frustrated. But the regret feeling doesn’t used to live long or I change my thought by concentration on other things or drown into dreams. I need to say I haven’t seen a therapist being so kind like Rajesh and I never seen him in tense or harsh during exercise (it’s a different story at beginning while he wasn't well aware about the disorder) I doubt whether he knows at least how to act severely. Hehe… Hope he better stay that way for me to continue happily the exercise.  

I think it’s time to go to bed now… time 10.13 pm. Thanks for all your support and encouragement on behalf fight with my MD! :)

18 comments:

TexWisGirl said...

i am glad you have found a physical therapist that is both helpful and now understands you and the disease you have. i hope it is helping strengthen your body and fight back.

Namrata said...

I salute to your optimistic adherence towards life. Life is no simpler for the people beefed with muscles. So never get frustrated. Live life like king size!!! He he he..

krystyna said...

Hi Jeevan!
Do you remember me?
I remember you as the best friend and the best man.
And I wish you always all the best
my dear friend!
Take care!

Optimistic Existentialist said...

I really enjoyed reading this Jeevan. I have grown to love your blog and I always like learning more about those nehind the blogs I read. You are a very brave man and you inspire me!

Ponniyinselvan/karthikeyan said...

Jeevan,
i have seen him in your home.Talks little.Good man.On behalf of you I too thank him for giving you special attention.
karthik+amma

Fernando Santos (Chana) said...

Meu caro, muito o brigado pela visita e desejo-lhe que continue com a coragem e muita força para enfrentar a sua doença....

Um forte abraço

Ramya Ranganathan said...

:) Thoughts lead our life.. you are optimistic.. continue to be the same!!

Take care!

Pattu Raj said...

Jeevan, I admire your positive energy you display in your posts. I had read your "about" page , initially,but understand more about your ailment now.

Your blog posts are becoming more and more interesting. Your photographs and selection of the subjects are energy boosters for readers.

Please continue to write , continue to share your wellness moments as well
as frustrations. It is by sharing we reduce our suffering , and enhance our joys.

Our prayers are always with you.

Karen @ away for the weekend said...

It's good that you have a therapist that understands you and is gentle - this must help a great deal. Keep the positive thoughts - you're an inspiration.

ashok said...

You are an inspiration jeevan...keep going mate

ladyfi said...

I too salute you - your courage and optimism. It's an honour to know you.

Elsie Amata said...

You always touch a special place in my heart. My cousin has the same MD as you. She married a wonderful man and they are so very happy. She shares your optimism in life.

geeth said...

You're well on track in bringing yourself forward. Stay optimistic. God be with you always..
Stay inspired, be an inspiration!
Take care..

Rajesh said...

You are a brave man and I am glad people are treating you normally.
Take care.

eden said...

My first time to hear this kind of disorder. You are an inspiration, Jeevan!

Jeevan said...

Thank you all for the support and hopeful words, it lifts my spirit and takes me forth… and I’m sure my optimism continues to work much better. Hope I conveyed my health simply to be understood well.

Indrani said...

I like your positive spirit. You are an inspiration!

Ms. S said...

Hello! This is my first visit to your blog and I'm inspired by your outlook towards life; your posts show your brave spirit and honesty too.
My best wishes to you. :)