In initial days I had no ideas what’s happening to me and I couldn’t realize or understand what’s stopping me from progress up on myself individually and I hate for not being able to cope up with others and felt that everyone leaves me behind to walk at slow pace and struggle to climb the stairs. I feel so disgrace for being distinct from other children and what others might think about me attitude refuses me to be easy always in streets and school and being unconcerned then it doesn’t mattered me more except few moments to be disgust.
I always avoid thinking back how life has been then struggling to go to school every day and mostly the thought of how to overcome the regret of people despite overviewed by students which sense me dislike and want to stop going to school and stay home to avoid fighting every day. Somehow I managed to complete certain class and thus I was later forced to a situation where I couldn’t concentration on anything, except how to manage the day without wetting trouser and falling down while reaching and leaving home.
I really don’t understand the seriousness of my problem until one day I see my parents coming out of the doctor’s clinic with tear eyes and the series of doctors been consulted couldn’t help me or my parent to console the grievance that I could depart certainly within a time. I couldn’t sense till somehow what an immense shatter it would be to break my parents hearts which I seen through their eyes and I always see their eyes to understand what they think or feel about and certainly there’s no end for their tears and the several treatment we had gone through doesn’t gave hand.
I could not say that all treatment haven’t support me a lot, but there are few treatments and equipments guided by doctors had hold me for some time and one among them had put me on calipers which supported me till a year aback. Over all the problem of Muscular Dystrophy was seen at a particular kind that was Duchenne, but only later we found that there are more than 44 types related to it and I was gladly to come under one category LGMD (limb-girdle muscular dystrophy) which is somehow a slow processor related to Duchenne which is more severe in this category.
Today I understand a lot about my problem and what kind of activates are better for good to add and bad to avoid. My problem is not very difficult to explain because its particular cause was loses of muscles strength and wherever there are muscles would lose it strength slowly towards quite loss of death and usually the lungs are main organs to disturbed often with infection and cold because of lack of resistance power, which I am suffering from lately. I know where my life leads so and I don’t worry about it right now since our life is inevitable and don’t know what will happen next moment. But I hope for a better future.
I always avoid thinking back how life has been then struggling to go to school every day and mostly the thought of how to overcome the regret of people despite overviewed by students which sense me dislike and want to stop going to school and stay home to avoid fighting every day. Somehow I managed to complete certain class and thus I was later forced to a situation where I couldn’t concentration on anything, except how to manage the day without wetting trouser and falling down while reaching and leaving home.
I really don’t understand the seriousness of my problem until one day I see my parents coming out of the doctor’s clinic with tear eyes and the series of doctors been consulted couldn’t help me or my parent to console the grievance that I could depart certainly within a time. I couldn’t sense till somehow what an immense shatter it would be to break my parents hearts which I seen through their eyes and I always see their eyes to understand what they think or feel about and certainly there’s no end for their tears and the several treatment we had gone through doesn’t gave hand.
I could not say that all treatment haven’t support me a lot, but there are few treatments and equipments guided by doctors had hold me for some time and one among them had put me on calipers which supported me till a year aback. Over all the problem of Muscular Dystrophy was seen at a particular kind that was Duchenne, but only later we found that there are more than 44 types related to it and I was gladly to come under one category LGMD (limb-girdle muscular dystrophy) which is somehow a slow processor related to Duchenne which is more severe in this category.
Today I understand a lot about my problem and what kind of activates are better for good to add and bad to avoid. My problem is not very difficult to explain because its particular cause was loses of muscles strength and wherever there are muscles would lose it strength slowly towards quite loss of death and usually the lungs are main organs to disturbed often with infection and cold because of lack of resistance power, which I am suffering from lately. I know where my life leads so and I don’t worry about it right now since our life is inevitable and don’t know what will happen next moment. But I hope for a better future.